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Learning & Resources

I've pretty much come to terms with the fact that I am not an expert in anything... but lots of other people are.  To enhance and broaden my own experience I am working on learning as much as I can about issues from the experts, since once again, I know very little and the more I know the less I seem to know, you know?  So this page has the scoop on all things I'm broadening my own tiny mind with throughout this experience, in case you are intrigued and want to know more too! (You're welcome friends)

 

***One more side note, just because I have read them and have them on this site does not mean that I agree with everything being said, I am just learning about the issues from all sides is all.***

 

****Okay, one more, more side note, though I have all these resources here, and I think it would be valuable for you to check them out, honestly, I'd much prefer if you simply decided not to look over them at all and live your life. Go call your grandmother or aunt or long lost cousin that you haven't spoken to in years.   (Maybe even discuss these topics with your friends, just to shake things up) Go try new things, enjoy the people in your LIFE. You only get one.  You Only Live Once.  And so do the people you have the privilege to encounter and spend time with.  Please do not waste it. Okay, now I'm done and I will get off the soap box.****

Books (& Media)...

I've either read or am in the process of reading

Providing different thoughts and perspectives 

Fancy Studies and Documents...

that make me feel learn-ed

 

 

have fun reading!

1. Safe Passage by Mark Lazenby, PhD, Ruth McCorkle, RN, PhD, and Daniel P. Sulmasy, MD, PhD

 

2. Life and Death in the ICU by Joan Cassell

 

3. Me before You by Jojo Moyes

 

4. Evangelium Vitae, The Gospel of Life by St. Pope John Paul II

 

5. The Prophet by Kahlil Gibran

 

6. Aging, the Fulfillment of Life by Henri J.M.

Nouwen and Walter J. Gaffney

 

7. The River by Flannery O'Connor

 

8. Am I Dying? TED talk by Dr. Matthew O'Reilly

 

 

 

9. Being Mortal by Atul Gawande

 

 

 

10. Bioedge: website with Bioethics news from around the world

 

 

11. Saving 10,000 Documentary: On Japanese Suicide

 

 

12. Hospice Friendly Hospitals Ireland: a short animation video by the Irish Hospice Foundation

 

 

 

 

13. The Problem of Pain by C.S. Lewis

 

14. Narcissus and Goldmund by Herman Hess

 

15. The Brothers Karamazov by Fyodor Dostoyevsky

 

16. NPR "Fresh Air" Whyy podcast: "A Doctor's Case for Medical Marijuana".... go to minute 27 and listen to the second half.  It presents a fantastic perspective on EOL Care in the US, it's progression and the discussions around it.

 

 

 

 

 

17. "Right to Die in Belgium"  - some traumatic images so watch with care

 

 

 

18. The Problem of Pain by C.S. Lewis

 

19. A Celtic Book of Dying by Phyllida Anam-Aire

 

20. The Tibetan Book of Dying by Sogyal Rinpoche

 

21. "Departures" - Japanese film (2008)

 

22. "Adam's Apfel" - Danish film (2005)

 

23. "Motorcycle Diaries" - Latin American Film (2004)

 

Adamopoulos, Helen. "The Cost and Quality Conundrum of American End-of-Life Care." N.p.,  3 June 2013. Web.

 

Aslakson, Rebecca A., J. Randall Curtis, and Judith E. Nelson. "The Changing Role of Palliative Care in the ICU." Critical Care Medicine (2014): 1. Web.

 

Bell, Michael. "Why 5% of Patients Create 50% of Health Care Costs." Forbes. Forbes Magazine, 10 Jan. 2013. Web. 25 Nov. 2014.

 

Broad, Joanna B., Merryn Gott, Hongsoo Kim, Michal Boyd, He Chen, and Martin J. Connolly. "Where Do People Die? An International Comparison of the Percentage of Deaths Occurring in Hospital and Residential Aged Care Settings in 45 Populations, Using Published and Available Statistics." International Journal of Public Health 58.2 (2013): 257-67. Web.

 

Callahan, Daniel. "When Self-Determination Runs Amok." The Hastings Center Report 22.2 (1992): 52-55. JSTOR. Web. 28 Nov. 2014.

 

Campbell, Matthew. "Holland to Allow 'baby Euthanasia'." The Sunday Times. N.p., 5 Mar. 2006. Web. 13 Nov. 2014

 

Chochinov, Harvey Max. "Dignity-Conserving Care-A New Model for Palliative Care." JAMA Network. American Medical Association, n.d. Web. 30 July 2015.

 

Cook, Deborah, Marilyn Swinton, Feli Toledo, France Clarke, Trudy Rose, Tracey Hand-Breckenridge, Anne Boyle, Anne Woods, Nicole Zytaruk, Diane Heels-Ansdell, and Robert Sheppard. "Personalizing Death in the Intensive Care Unit: The 3 Wishes Project." Annals of Internal Medicine (2015): n. pag. Web.

 

Curtis, J. Randall, Deborah J. Cook, Richard J. Wall, Derek C. Angus, Julian Bion, Robert Kacmarek, Sandra L. Kane-Gill, Karin T. Kirchhoff, Mitchell Levy, Pamela H. Mitchell, Rui Moreno, Peter Pronovost, and Kathleen Puntillo. "Intensive Care Unit Quality Improvement: A how-to Guide for the Interdisciplinary Team*." Critical Care Medicine 34.1 (2006): 211-18. Web.

 

Duncan, David E. "What Price For Medical Miracles? High Costs At End Of Life Still Part Of National Health Debate." Kaiser Health News What Price For Medical Miracles High Costs At End Of Life Still Part Of National Health Debate Comments. N.p., 9 Mar. 2010. Web. 

 

Ely, E. Wesley. "Last Stand." Pulse-Voices from the Heart of Medicine - Last Stand. N.p., n.d. Web. 30 July 2015.

 

Emanuel, Ezekiel. "Why I Hope to Die at 75." The Atlantic. Atlantic Media Company, Oct. 2014. Web. 23 Nov. 2014.

 

Fischer, Stacy, Sung-Joon Min, Lilia Cervantes, and Jean Kutner. "Where Do You Want to Spend Your Last Days of Life? Low Concordance between Preferred and Actual Site of Death among Hospitalized Adults." Journal of Hospital Medicine 8.4 (2013): 178-83. Web.

 

Genuis, Quentin I. T. "Dignity Reevaluated: A Theological Examination of Human Dignity and the Role of the Church in Bioethics and End-of-life Care." The Linacre Quarterly (2015): 150716070529005. Web.

 

Hansen-Flaschen, John. "A Practical Approach to Humanizing Care for Patients Who Are Expected to Die in an Intensive Care Unit." Annals of Internal Medicine Ann Intern Med (2015): n. pag. Web. 

 

Harris, Elise. "Pope Francis Blasts Abortion, Euthanasia as 'sins against God'" :: Catholic News Agency (CNA). N.p., 15 Nov. 2014. Web. 26 Nov. 2014. 

 

Higginson, Irene J. "End-of-Life Care: Lessons from Other Nations." Journal of Palliative Medicine 8.Supplement 1 (2005): S-161--173. Web.

 

"How Can We Reduce End-of-Life Health-Care Costs?" The Wall Street Journal. Dow Jones &

 Company, 3 Mar. 2014. Web. 25 Nov. 2014.

 

Kaufman, Sharon R. "In the Shadow of "Death with Dignity": Medicine and Cultural Quandaries of the vegetative State." American Anthropologist 102.1 (2000): 69-83. Web.

 

Kellehear, A. "Compassionate Communities: End-of-life Care as Everyone's Responsibility." Qjm 106.12 (2013): 1071-075. 18 Oct. 2013. Web.

 

Khandelwal, Nita, Ruth Engelberg, David Benkeser, Norma Coe, and Randall Curtis. "End-of-Life Expenditure in the ICU and Perceived Quality of Dying." Chest 6th ser. 146 (2014): 1594-603. Web. 

 

Lunney, J. R. "Patterns of Functional Decline at the End of Life." JAMA: The Journal of the American Medical Association 289.18 (2003): 2387-392. Web.

 

Miller, A. C., A. Ziad-Miller, and E. M. Elamin. "Brain Death and Islam: The Interface of Religion, Culture, History, Law, and Modern Medicine." Chest 4th ser. 146 (2014): 1092-101. PubMed. Web.

 

Rachels, James. "Active and Passive Euthanasia." New England Journal of Medicine 292.2 (1975): 78-80. Web.

 

Schleyer, Anneliese M., and J. Randall Curtis. “Family Satisfaction in the ICU: Why Should ICU Clinicians Care?” Intensive care medicine 39.6 (2013): 1143–1145. PMC. Web. 29 Sept. 2015.

 

Sprung, Charles L., Simon L. Cohen, Peter Sjokvist, Mario Baras, Hans-Henrik Bulow, Seppo Hovilehto, Didier Ledoux, Anne Lippert, Paulo Maia, Dermot Phelan, Wolfgang Schobersberger, Elisabet Wennberg, and Tom Woodcock. "End-of-Life Practices in European Intensive Care UnitsThe Ethicus Study." Journal of American Medical Association 3rd ser. 260 (2003): 790-97. PubMed. Web.

 

Street, Annette F., and David W. Kissane. "Result Filters." National Center for Biotechnology Information. U.S. National Library of Medicine, n.d. Web. 30 July 2015.

 

Sulmasy, Daniel P. "Ethos, Mythos, and Thanatos: Spirituality and Ethics at the End of Life." Journal of Pain and Symptom Management 46.3 (2013): 447-51. Web.

 

Teno, Janet, Pedro Gozalo, Julie Bynum, Natalie Leland, Susan Miller, Nancy Morden, Thomas Scupp, David Goodman, and Vincent Mor. "End-of-Life Care for Medicare Beneficiaries." JAMA Network. N.p., 6 Feb. 2013. Web. 25 Nov. 2014.

 

Tippets, Kara. "Dear Brittany: Why We Don't Have To Be So Afraid of Dying & Suffering That We Choose Suicide." A Holy Experience. N.p., 8 Oct. 2014. Web. 25 Nov. 2014.

 

Vincent, Jean-Louis. “Critical Care - Where Have We Been and Where Are We Going?” Critical Care 17.Suppl 1 (2013): S2. PMC. Web. 29 Sept. 2015.

 

Vincent, Jean-Louis, Miet Schetz, Jan J. De Waele, Stéphan Clément De Cléty, Isabelle Michaux, Thierry Sottiaux, Eric Hoste, Didier Ledoux, Annick De Weerdt, and Alexander Wilmer. "“Piece” of Mind: End of Life in the Intensive Care Unit Statement of the Belgian Society of Intensive Care Medicine." Journal of Critical Care 29.1 (2014): 174-75. Web.

 

Vizcarrondo, Felipe E. "Neonatal Euthanasia: The Groningen Protocol." American College of Pediatricians (2014): n. pag. Print.

 

 White, D. B., N. Ernecoff, J. A. Billings, and R. Arnold. "Is Dying in an ICU a Sign of Poor Quality End-of-Life Care?" American Journal of Critical Care 22.3 (2013): 263-66. Web.

 

White, D. B., A. Jonsen, and B. Lo. "Ethical Challenge: When Clinicians Act as Surrogates for Unrepresented Patients." American Journal of Critical Care 21.3 (2012): 202-07. Web.

 

You JJ, Levinson W, Laupacis A. Attitudes of family physicians, specialists, and radiologists about the use of computed tomography and magnetic resonance imaging in Ontario. Healthcare Policy 2009;15:54-65.

 

You JJ, Venkatesh V, Laupacis A. Better access to outpatient magnetic resonance imaging in Ontario: but for whom? Open Medicine 2009;3:22-5.

 

“Do not read, as children do, to amuse yourself, or like the ambitious, for the purpose of instruction. No, read in order to live.” 
― Gustave Flaubert

More Resources

Grieving Death by a Sudden Loss http://www.econdolence.com/learn/articles/grieving-sudden-loss/

 

Dealing with Anger in Grief http://zintaharris.com/2018/02/15/dealing-anger-grief/

 

6 Ways Grief Counseling Can Help You https://blog.prepscholar.com/grief-counseling-therapy

 

How to Help Your Grieving Parent (and Yourself) After the Death of Your Mom or Dad http://www.legacy.com/news/advice-and-support/article/helping-your-grieving-parent

 

Decluttering Your Home after the Loss of a Loved One: A Step-by-Step Guide to Moving through the Difficult Process https://www.homeadvisor.com/r/decluttering-after-loss-of-a-loved-one/

 

Grief and Recovery: Overcoming Guilt and Loss After the Death of an Adult Child https://blog.ioaging.org/end-of-life/grief-and-recovery-overcoming-guilt-and-loss-after-the-death-of-an-adult-child/ Bearing the

 

Special Grief of Suicide https://www.soslsd.org/resource/bearing-the-special-grief-of-suicide/

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